Better late than never

Sep. 21st, 2017 06:57 pm
flemmings: (Default)
[personal profile] flemmings
So now we're having the summer weather we didn't get in July and August. Mellow warm clear days without a hint of rain, sun hot in the afternoon but not unbearable, cicadas singing out of season, nights what August would call cool- 16, 17- but I still use the window AC, even set at 20C. It's as much for the dryness as to avoidance allergens (bad year for those) as well as the skunk that has its sights set on being king of the block. Gratefully, I can afford this luxury because the property tax increase rebate came through to the tune of 750 dollars.

Can also afford dinner at Pauper's Pub, excellent meatloaf and a frozen margarita, out on the patio under the yellow and falling leaves of the pumpkin trees.

The Indian gardener's son has gone with grass on his front lawn. Foolish foolish Indian gardener's son. Look at your next-door's unavailing attempts to have greenery. Only one house on this street has decent grass, and bets are taken as to whether it's the real thing or an expensive kind of astroturf. Sensible people go with ground cover.

Last April's mouse was invisible except for the magically vanishing bait in the untipped tip-trap. No gnawed bread in the bread bag, no poo on the counters. But I always had a feeling that it was still around somewhere. And thus, when I carelessly left half an unpalatable green-tea mini-mooncake on the table last night, perhaps no surprise that I found much of it demolished this morning, accompanied by large (for a mouse) mouse turds. Tip-trap is now baited with mooncake, and we shall see if mouse has become any porkier since the spring.

Final loading dose... DONE!

Sep. 21st, 2017 04:45 pm
stonebender: (Default)
[personal profile] stonebender
I’ve had trouble writing the last two posts. I’m a slow correspondent, what can I say? I’m not sure this post gets to what I wanted to talk about, but it’s close. I may work on it some more, but I thought letting people know what’s going on was more important than perfect communication.

On September 5th, I received my last loading dose of Spinraza (Huzzah!). After six tries and four successful injections, it seems that I have learned how to advocate the best circumstances for success. Pain meds help in allowing me to stay on the table longer and the longer I can stay there, the more chances for a successful lumbar puncture. The pain meds also help with recovery. The first few times we tried an LP, successful or not, it took several days for me to stop feeling sore. I also make sure I’m not put on the table until the radiologist and doctor are ready to go. That way they have the most time to get the needle where it’s supposed to go with as little pain as possible. So although the last loading dose took a couple hours before it was successful. It was successful!

Most of the staff were new to me. I started explaining what needed to be done and the staff were paying attention. After a bit my morning worker started taking over just by saying things like, “Wasn’t Guy’s wheelchair parked over there and you brought the lift over here?” Basically, asking questions that clarified my instructions. After a bit it was fascinating to watch. She knew me and she has been through this dance with me several times now. She knew what had worked. So I let her take over the logistics. As usual, the staff followed directions and were concerned with my comfort.

I have been paying attention to any physical changes since the treatments began. I didn’t feel much at first. Except that my breathing is easier. I’m worried that the improvement is just a placebo effect. I want to feel like all this effort amounts to something. Seems like the beneficial effects of the treatment are so subtle. [personal profile] loracs and I will be the only ones to notice.

I’m really looking forward to the next pulmonologist appointment. Then I will have some objective evidence that I’m actually improving. Until then I keep racking up observations. Along with stronger lungs, [personal profile] loracs has noticed the grip strength in my left hand is stronger. I feel some strength in my arms, but it’s not like I can suddenly raise my arm above my head. It seems like I can gesture a little more. I think I have a little bit more motion in my right hand when I use my trackball. Nothing I couldn’t do before, but it seems like I can do it longer and with less fatigue.

After the third dose, I noticed that my neck seems to be stronger. Driving in the car is always a bit of a roller coaster ride for me. I can’t hold my head very well, so it flops around a bit. I try to ride in the car in a reclined position, but that cuts into the sightseeing. I usually alternate between reclining and sitting straight up. Still, my head flops around more than I like. I’m noticing now that I can keep my head up most of the time. I also noticed that I can lift my head off the bed if it is at a little angle. I can’t lift it from completely prone. I don’t think I could lift it at all before the Spinraza.

On the possible negative side, I’ve noticed some tension headaches since the fourth dose. They don’t last long and they could just be hay-fever. The pain is similar, but I notice it when I’m being impatient or a little pissed. I am not at all sure if this is related to the drug. That’s about all I’ve noticed at this point. I think I’ll be getting a follow-up appointment in the future. So they can see where I’m at and decide what to do. I may get some physical therapy. (So I can look buff.)

On the reimbursement front, I received one of those “this is not a bill” statements from Medicare. It seems to say that all the hospital stuff is covered, but it doesn’t specifically say anything about whether the Spinraza has been covered. It even says that Connie’s services are covered but nothing about the drug. Connie seems optimistic they will get reimbursed. I’m disconcerted, but I’ll cope. Thanks everyone. I’ll keep you in the loop.

Game Review: Overlord

Sep. 22nd, 2017 12:07 am
green_knight: (Skyrim)
[personal profile] green_knight
[expanded from the review I posted on Steam]

Review and Discussion )


Bonus review-let: Forced.

Forced, Gamification of Games, Player vs. Designer )

So, yeah. I am learning something about gaming, game design, or myself from every game I play, and I am glad I seem to have broken through the mountain of shame (OMG, so much stuff I've never played, best never look at them) and guilt (OMG, so much wasted money). I no longer feel compelled to 'give every game a fair chance' just because I once spent money on it. (Frequently, in bundle deals, I did not even set out to buy all of the games.)

Overall, I spend less than £5/month on games and, overall, I enjoy gaming. I'm not going to get the same amount of fun out of every game, but if I can average a couple of hours of fun for every £5 I pay, that's actually not bad value for money.

Letter to my Senators

Sep. 21st, 2017 03:12 pm
lydy: (Default)
[personal profile] lydy

Dear Senator,

 

I know you have fought, again and again, for the ACA.  Thank you.  Please continue to fight.

 

Allow me to tell you about my personal situation.  I am fifty-five, female, and employed.  When I was a child, I was diagnosed with asthma.  These days, I’m mostly fine.  I have a rescue inhaler, but rarely need it.  But that diagnosis is a pre-existing condition.  That means that, if the Graham-Cassidy bill goes through, I could be denied coverage.  When I was in my thirties, I was diagnosed with major depressive disorder and bipolar disorder.  I was treated, and am currently just fine; I no longer even need drugs to manage this condition.  It is even possible that the diagnosis was not entirely correct.  However, that diagnosis is in my medical chart, and therefore a pre-existing condition.  Therefore, I could be denied coverage.  When I was thirty-five, I was diagnosed with obstructive sleep apnea.  I have a CPAP machine which I use nightly.  It won’t last forever.  I need to replace the mask at least once every six months.  This is a pre-existing condition, and I could be denied coverage.  Any one of these conditions could kill me.  Any one of these conditions could mean that I can be denied coverage.  And not just denied coverage for this condition, but denied coverage at all.  This has happened to me before.  When I lost my job, no insurance company would offer me any coverage at all, because of the bi-polar diagnosis.  I was fortunate enough to live in Minnesota, which offered Minnesota Care.  Not every state has such programs. 

 

The holy grail, according to the Republicans, for health coverage is “choice.”  As if I, or most people, have ever had any real choice.  I get my insurance through my employer, who negotiates with an insurance company, and those negotiations don’t include me or my interests.  I may be offered a “choice” of tiers.  When my employer and the company they have contracted with parts ways, no amount of pleading will allow me to keep my doctor.  I will be subjected to transitioning care to whoever it is that my employer has contracted with this year.  This has happened to me over and over and over again throughout my working life.  The claim that the ACA has reduced choice is laughable.  Most of us have had no choice, anyway.  What it provided, what it guaranteed, was access.  I might prefer to see the doctor I have been seeing, sure, but I _need_ to be able to see a doctor.    I have preferences, yes, but access is much more important.

 

Health insurance isn’t like car insurance.  I can choose to pay a minimum amount to cover my old beater, because quite honestly, if it’s in an accident, there’s not much point in fixing it.  This is not true of my body.  I can’t just write off my aging body as not worth fixing.  I can’t decide to buy a new, better body.  Still, we are required to buy car insurance, if not for ourselves, for the people we might hurt if we run into them.  And in this sense, there is a similarity between health insurance and car insurance.  Health insurance means that I can afford to get vaccinated, and treated for serious, contagious diseases such as tuberculosis.  And that protects everyone I come in contact with, including those who are too young, or in too fragile health to get vaccinations.  This is important, and necessary, for all of us.  I really don’t want to die of bacterial pneumonia, and neither do you.  I don’t want to watch a generation of children be crippled by polio, or die of scarlet fever.  And yet, when you strip away the ability to get health care from the poor, this becomes a very real danger. 

 

Please continue to fight.  Please feel free to share any of the details of this letter with your colleagues or anyone else in this fight for my life. 

 

****

Sigh.  My senators are Franken and Klobuchar.  Maybe they can wave their numbers in someone else's face.  

I really don't want to die.  Why do the Republicans want to kill me?

The Good Place: Season 2, Episode 1

Sep. 21st, 2017 12:32 pm
rachelmanija: (Default)
[personal profile] rachelmanija
Absolutely fantastic. Do not click on cut unless you've already seen it. The whole series is streaming on nbc.com.

Read more... )
yhlee: snowflake (StoryNexus: snowflake)
[personal profile] yhlee
[Note: I used Cheris and Jedao as my playtest characters when working on Winterstrike, a StoryNexus game I wrote for Failbetter Games.]

"I can't believe you didn't think it was worth telling me that we're living inside a game," Jedao was saying.

Cheris sighed. "I didn't tell you," she said, "because you wouldn't be able to shut up about it, and it's hard being a good playtest character when someone keeps ranting." cut for Ninefox spoilers, I guess? )

To Hell in a Handbasket

Sep. 21st, 2017 06:37 pm
aldersprig: (Aldersprig Leaves Raining)
[personal profile] aldersprig
It was a very nice basket, Yeri had to admit.

It was pretty, well-woven, and tidy, and it was just large enough that he could fit in it.  Not particularly a hand-basket, if you were really going to think about the term as such.

Then again, most baskets were not man-sized, most baskets did not have lids, and most of them did not have wheels. 

read on…
asakiyume: (feathers on the line)
[personal profile] asakiyume
I'm doing a little bit of writing with some adult learners (there may be some high school students in this class as well)--just ten minutes or so. I don't have any pedagogical reason to believe this is beneficial, except for believing that when people have pleasant experiences doing something, then that thing becomes less daunting. In other words, maybe, if the students enjoy this time writing, they'll feel more able to tackle the sort of writing you need to do to clear the hurdles in front of them. But even if that's not the case, I think people deserve a chance and a place to try out writing, just for its own sake and their own sake. So.

My first prompt for them was this quote from Fred Rogers: "You can grow ideas in the garden of your mind," which I recalled from this autotuned song made from that and other remarks of his.

I showed them some gardens.

A garden in Holyoke, created by "self-proclaimed plant geeks":


(Source)

Randyland, the garden created by Randy Gilson, a waiter and son of a single mom, in Pittsburgh, PA:


(Source)

The magic gardens of Isaiah Zagar in Philadelphia:


(Source)

The blooming Cadillacs at the Cadillac ranch in Amarillo, Texas:


(Source is this Google image, whose original location is given as this video.)

The famous Zen garden at Ryōanji, in Kyoto, Japan:


(Source)

And I said, even when you think a place is barren, nothing growing, life pushes through, like in this parking lot in Boston:


(Source)

And then I asked them--what's growing in the garden of your mind? Several people wrote that they felt like the parking lot and talked about worries, but one wrote about a painting she's planning, and another compared his mind to a potato (and gave me a diagram to show it growing). It was wonderful.

What's growing in the garden of *your* mind, these days?
aldersprig: (AylaSmile)
[personal profile] aldersprig
Chapter 46: Arnbjörg
by Lyn Thorne-Alder


She was trying, she really was.  

She wasn’t trying, perhaps, as hard as she ought to or as often as she ought to, but Arnbjörg was trying hard to accept this place.  It was just...

“It’s so fucked up.”  She threw up her hands.

“What?”  Jaya turned to look at her. They were studying together on their bed, Jaye’s head on Arnbjörg’s shoulder.  They hadn’t been talking at all; Arnbjörg had been glaring at her textbook and attempting to focus.

“This school.  Everything about it.  Babies.”

read on...

*whew*

Sep. 21st, 2017 08:55 am
oracne: turtle (Default)
[personal profile] oracne
Hurrah for hermiting!

Things I could have done on Wednesday: lunchtime free Zumba class, free Bach Collegium concert.

Things I did do on Wednesday: went straight home, ate, showered, crawled into bed with fanfiction, went to sleep early, sleeeeeeeeeeept.

I feel much better today, in the sense that fewer things hurt physically. And I realized this morning that nothing was stopping me from taking a day off tomorrow. That would mean I can sleep in after "Elizabeth Cree" tonight, and go to bed early before my crack of dawn train to NYC on Saturday morning.

What a removal of mental weight. A day off. How glorious. It will be much easier to enjoy my day in NY with a reasonable amount of sleep beforehand.

L'Shana Tovah

Sep. 21st, 2017 04:54 am
sartorias: (candle)
[personal profile] sartorias
L'Shana Tovah, all. L'Shana Tovah.

QotD

Sep. 21st, 2017 05:24 am
dglenn: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (Default)
[personal profile] dglenn

"Whatever your past has been, you have a spotless future" -- <not sure who said this>

[To my Jewish friends: Shanah Tovah!]

[syndicated profile] phd_comics_feed
Piled Higher & Deeper by Jorge Cham
www.phdcomics.com
Click on the title below to read the comic
title: "Your Social Parabola" - originally published 9/20/2017

For the latest news in PHD Comics, CLICK HERE!

conuly: (Default)
[personal profile] conuly
and then some!

*****************


German Shepherd Mom Tires Out Her Pups In The Most Adorable Way Possible (It is adorable! She alternates between bouts where they can't possibly catch up to her and bouts where they can, clever doggie!)

Scientists Invent a Pen That Can Detect Cancer in Seconds

For Centuries, People Celebrated a Little Boy’s First Pair of Trousers

“Do Sign Languages Have Accents?” (Video, or you can read the transcription)

Is there a single food that you can survive on forever?

The island people with a climate change escape plan

Here’s why you should pay attention to this weekend’s German election

There is meddling in Germany's election — not by Russia, but by U.S. right wing

What A Doctor Calls A Condition Can Affect How We Decide To Treat It

When the Idea of Home Was Key to American Identity

Parents Who Pay to Be Watched (OMG.)

Colombia partners with locals in order to stop cocaine production, US warns it may not be enough

Behind the scenes, Zimbabwe politicians plot post-Mugabe reforms

Iraqi Kurds set to vote on independence, panicking neighbors and Washington

What is behind clashes in Ethiopia's Oromia and Somali regions?

Facebook’s war on free will

Facebook Enabled Advertisers to Reach ‘Jew Haters’

The basic physics of climate change have been known for more than a century, but it is in recent decades that the fundamental science of global warming has solidified

The Minuscule Importance of Manufacturing in Far-Right Politics

Stop acting surprised, America: Donald Trump is a white supremacist

In Month After Charlottesville, Papers Spent as Much Time Condemning Anti-Nazis as Nazis

The Republicans Aren't Even Pretending This Is About Healthcare Anymore

Christians in U.S. Military ‘Serve Satan’ If They Tolerate Other Religions, Air Force Chaplain Says

Making war illegal changed the world. But it’s becoming too easy to break the law

Anatomy of terror: What makes normal people become extremists?
[syndicated profile] unfuckurhabitat_feed








yourinsidesxrayed:

I unfucked my car tonight!

Top row: everything that was in my trunk, plus all the leaves it had collected.

Bottom row: my trunk post-shop-vac, then reorganized. (Reusable shopping bags, jumper cables, blanket, emergency supplies, windshield scraper, etc.)

Not pictured: the rest of my car, which I also vacuumed.

Feels good! 🚗💪🏻

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timmc

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